Nicu Now Audio Support Series

Leaving the hospital after a NICU stay can feel like jumping off a cliff without a parachute. Parents no longer have the stability of doctors and nurses to rely on to meet our baby’s medical needs and answer questions about developmental milestones.  Joining us for a honest discussion about the emotional and physical challenges of caring for a medically fragile child at home is Kara Whalin. As a licensed therapist, as well as a parent who has experienced preterm birth and loss, Kara understands the challenges of a NICU stay on a personal and professional level.

JJ Heller is a singer/songwriter from Nashville, TN. She writes songs for just about every season of life. Over the course of her nearly 14-year career, she has had two songs chart at number 13 on the billboard charts, Your Hands from her 2008 album Painted Red and What Love Really Means from her album When I'm with You. Her husband Dave co-writes, plays guitar, shoots and edits her videos, and manages her career. Together they are raising two beautiful little girls who often appear on her Instagram and Facebook feeds.   In 2014, JJ recorded I Dream of You, an album of lullabies and songs about motherhood. In 2016, JJ committed to donate one copy of the album for every album purchased. To date, JJ has donated almost 10,000 CDs and over 17,000 digital copies of I Dream of You to charity – including to Hand to Hold for NICU families. 

Parenting in the NICU can be quite overwhelming. One of the first tasks parents face is to understand the role of the many different medical professionals treating our baby. To help us better understand the role of neonatal therapists in the NICU is Sue Ludwig. Sue is a licensed occupational therapist who has been practicing in the NICU at the University of Cincinnati Medical Center for over 20 years. She is passionate about improving quality of life for NICU babies.

During pregnancy, mothers have intimate, physical bonds with their baby. They are typically a little more excited about the purchase of maternity clothes, finding the softest baby blankets, and picking the best diaper bag. And they usually have sharper images and stronger expectations of the dream of a perfect birth. But fathers have dreams too, and their shattered expectations and inability to keep their wife and child safe during a traumatic birth may be very overwhelming. They may witness their child struggling for life at birth. They may find themselves faced with making critical medical decisions for their child while their wife is still in recovery. They often struggle to support their wives emotionally and find themselves exhausted as they try to balance life in the NICU, work and often other children at home.  

In this episode, host Kelli Kelley discusses the benefits and experience of reading to your baby in the NICU with Tom French, NICU dad and c-author of Juniper, The Girl Who Was Born Too Soon.

Across the country, NICUs are now encouraging parents to read to their babies as it serves as an important first step in bonding -- especially when parents are unable to hold their baby in the first days and weeks of life. In this episode, we discuss the research behind reading to our medically fragile children and its tremendous benefits not only for the baby, but the parent.

While it is easy to focus all of our attention on our fragile baby, we will be unable to care for them if we do not first take care of ourselves. Guests include Renee Trudeau, author of The Mother’s Guide to Self-Renewal and Kelli Foulkrod, psychotherapist and yoga teacher in Austin, TX, specializing in pregnancy and postpartum mood disorders.    

In this episode, we talk with licensed Marriage and Family Therapist and NICU parent, Kara Whalin, about risk factors and warning signs of postpartum depression, anxiety and PTSD during and after a NICU stay. 

Joining us to talk about finding your footing as parents in the Zero Zone is Kelley Benham French. Kelley is a professor of practice in journalism at Indiana University. A former reporter and editor for the Tampa Bay Times, she was a finalist for the 2013 Pulitzer Prize for “Never Let Go,” a series about her Daughter Juniper’s early birth at 23 weeks and six days. She is the co-author along with her husband of the book, Juniper, The Girl Who Was Born Too Soon, that chronicles their challenges with infertility, and the fear, sadness, exhaustion and joy of their daughter’s 196 day NICU journey.  

In this episode: Kelli discusses the difference between bonding with a newborn just after delivery and bonding with a medically fragile infant in the NICU. How bonding benefits both the baby and the parent. How parents who may be suffering from PPD may find it more difficult to bond with their baby, and how parents can process their emotions so they can start the bonding process. The benefits of parents being integrated into their baby’s care in the NICU This episode is sponsored by Huggies. 

In this episode: How parents can avoid letting stress and anxiety take over and find their footing in the NICU. Advice for empowering yourself as a parent and becoming your baby’s advocate. How to embrace your feelings of guilt and inadequacy, for they are normal, but to let go of the expectations you one had for your pregnancy/baby. Guilt about fears of caring for a disabled child. This episode is sponsored by Prolacta Bioscience. 

In This Episode: Kelli’s overwhelming emotions upon meeting her micropreemie son Jackson for the first time. What is anticipatory grief and what does it mean for NICU parents? What emotions can parents expect when faced with a NICU experience/meeting their baby for the first time? The different ways in which grief and shame manifest themselves in NICU parents. How moms and dads process guilt/grief differently. This episode is sponsored by Prolacta Bioscience. 

The NICU Now Audio Support Series is Hand to Hold's podcast for parents who are currently in the neonatal intensive care unit (NICU). The Prologue introduces listeners to what they can expect with the series.