Health Professional Radio - Podcast
Patient with Acute Hepatic Porphyria (AHP)
- Autor: Vários
- Narrador: Vários
- Editor: Podcast
- Duración: 0:12:32
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Sinopsis
Ariel talks about her journey of finally receiving a diagnosis of acute hepatic porphyria (AHP), a rare disease characterized by potentially life-threatening pain attacks. She is now able to manage her disease. She also discusses her experience being treated with Alnylam Pharmaceutical's GIVLAARI™ (givosiran) a drug approved by the FDA in November 2019 for the treatment of AHP.