Health Professional Radio - Podcast

Patient with Acute Hepatic Porphyria (AHP)

Informações:

Sinopsis

Ariel talks about her journey of finally receiving a diagnosis of acute hepatic porphyria (AHP), a rare disease characterized by potentially life-threatening pain attacks. She is now able to manage her disease. She also discusses her experience being treated with Alnylam Pharmaceutical's GIVLAARI™ (givosiran) a drug approved by the FDA in November 2019 for the treatment of AHP.