Speaking Of Nec: Necrotizing Enterocolitis"

Jennifer Canvasser. Photo courtesy of Jennifer Canvasser. Episode 7 features Jennifer Canvasser, Founder of the NEC Society, and Dr. Samir Gadepalli, NEC Society scientific advisory council member. In 2014, Jennifer founded the NEC Society, a non-profit organization dedicated to protecting fragile infants, after losing her son, Micah, to Necrotizing Enterocolitis. During the episode, Jennifer and Samir share the findings from the NEC Society’s survey aimed at characterizing parent perceptions of the practices and events related to their child’s development of NEC. They discuss: The design and development of the NEC Society’s online, international survey—research specifically focused on parents and their perspectives on NEC, The survey’s five areas of interest: education, awareness, support of human milk, information provided and information providers, and parental empowerment in the NICU, The survey findings including the demographics of the participants and their babies—all of whom were diagnosed with