Nicu Now Audio Support Series

In honor of Down Syndrome Awareness Month, we shed some light on life with a DS child with PICU mom, Stephanie Weinert. She shares how she received the diagnosis and how Beckett’s entrance into the world changed her life. In this episode we briefly discuss death, dying and grief.   In this episode, we chat about: The day she learned her son was diagnosed with Down Syndrome. What were some of the things you had to re-learn as a mom after Beckett's diagnosis? What were some of Beckett's challenges and how did those affect your family? What are some of the greatest things Beckett brought to your family? Often, we fear what we do not know. What's something you feared that either never came to fruition or was less stressful than you imagined it might be? What are some ways you honor Beckett's life and how are you managing your grief particularly during anniversaries or the holidays? What's something you want people to know about Down Syndrome? What would you tell old Stephanie, knowing what you kno