Larry Williams Drive

An Auckland mum has moved her family across the ditch to Sydney so she can access a life-saving drug. Fiona Tolich has been advocating for Pharmac to fund Spinraza since she developed spinal muscular atrophy 12 years ago. Pharmac has announced it's funding the medicine for under 19s from this year, but Tolich isn't young enough. Fiona says she couldn't take the chance on waiting for funding for her age group. LISTEN ABOVESee omnystudio.com/listener for privacy information.