Nicu Now Audio Support Series

As we celebrate American Heart Month, heart mama and two-time cancer survivor, Kasie Marek, speaks openly and honestly about what it’s like to have a son with Hypoplastic Left Heart Syndrom (HLHS). We have a beautiful discussion about the realities of caring for a child with a serious and rare heart condition. In this episode, we chat about: What is Hypoplastic Left Heart Syndrome (HLHS)? How does HLHS affect a family: emotionally, logistically and financially? What are the treatment options available for HLHS? What are the effects of a heart transplant on a family? What’s the best advice for a fellow heart mama? Kasie Marek is a medical mom trying to figure it all out, one day at a time. A two-time childhood cancer survivor who entered the “nurse" mom world after her first-born, Noah, was born with Hypoplastic Left Heart Syndrome (HLHS). Now, she’s trying to navigate the everyday life of medical to-do lists, while still being a MOM, WIFE, and prioritizing self-care. Connect with Kasie: Instagram: