Heart To Heart With Anna

Send us a textGuest, Jordan D. Marcia joins Guest Host, Megan Tones again this week. He talks to her about his goal to visit countries all over the world and how he has traveled to many different countries. Jordan and Megan share some travel stories and tips for other Heart Warrior travelers. You won't want to miss this fun, adventurous show!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textJordan Marcia is an amazing survivor! He shares with Guest Host, Megan Tones, his unconventional medical history which included being born with transposition of the great arteries, multiple failed surgeries to palliate his heart condition, the development of a potentially-threatening lung condition known as plastic bronchitis and then the miracle of a heart transplant that eliminated the plastic bronchitis altogether. Tune in to hear Jordan's story about what other condition threatened his life and how it was treated. Discover why Jordan thinks he should make it to the age of 40 even though most transplant patients only survive for 10 years post-transplant. You'll also discover the link to Jordan's own channel and how you can learn more about this miraculous young man.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community b

Send us a textVikas Mahajan is a heart transplant recipient who was fortunate enough to have the benefit of modern medicine to enable him to wait for 3 years for a transplant. Born with hypertrophic cardiomyopathy, he has had to endure the implantation of pacemakers, implantable cardioverter defibrillators or ICDs and a left-ventricular assist device (also known as an LVAD). His ultimate surgery, cardiac transplantation, has resulted in a much-improved quality of life.Vikas shares his medical history with us, how he came to need an LVAD and in the last segment he tells us about receiving the Gift of Life and offers some advice for others who might be walking the same path he did.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue

Send us a textJim Murrell is commonly known on YouTube as "The Transplant Helper" due to his YouTube channel full of episodes helping the transplant community. Jim was born with a congenital heart defect known as transposition of the great arteries. The Mustard Procedure helped Jim to live until adulthood and then he began having problems. Listen to find out what kind of rhythm issues Jim had and what was required to help him survive. Tune in to hear about Jim's journey and what caused him to begin his YouTube channel.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textMelanie Slavinski talks with Anna about her son's medical journey in living with a congenital heart defect. Xavier's heart defect, cardiomyopathy, resulted in his need for a heart transplant. Join Anna and Melanie as they discuss Xavier's journey, including the use of ECMO, a Berlin Heart prior to transplantation and more!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textFormer professional soccer player, Chuck Estrada, shares his heart journey with Anna on this episode of "Heart to Heart with Anna." Chuck describes how he was born with transposition of the great arteries in 1974, the surgeries he required over time and the events that caused him to travel down a totally new and previously unexplored path by him. Chuck describes how his mother helped him to pursue his desire to be a professional ballplayer, despite having medical equipment which could have interfered with his ability to live the life he dreamed of.From the age of 19 until he received the Gift of Life, Chuck lived a life of uncertainty yet he never let go of his dream. When he finally couldn't play soccer and be the player his team deserved he retired from the sport but shortly after became a soccer coach.In today's episode of "Heart to Heart with Anna" Chuck talks with Anna about common myths surrounding heart transplantation and what the truth is behind the misconc

Send us a textShannon Arriaga is the mother of a child who was born with a critical, congenital heart defect. Eric was born with hypoplastic left heart syndrome and he ended up having a Fontan Procedure. Shortly after the Fontan Procedure, he developed a life-threatening condition known as protein-losing enteropathy or PLE. For more information about PLE, check out this link: https://www.chop.edu/conditions-diseases/protein-losing-enteropathy-ple but to explain it very simply, this is a condition where the body is unable to process proteins properly and, if it's serious enough, a person can die due to lack of growth and development.When Eric's condition became dire enough, the family turned to their last option -- a heart transplant. Shannon tells Anna about the wait for a heart and what happened to Eric after he received the gift of life. Most importantly, she shares what happened to Eric's PLE after the heart transplant process.Thank you to everyone who has helped HUG in creating our podcasts

Send us a textThis episode features returning Guests Amy and Jessica Cowin. Amy Cowin was featured in Season 11 of "Heart to Heart with Anna" in the Heart Warrior Siblings series. She is a heart-healthy sister. Jessica Cowin is Amy's older sister who was born with hypoplastic left heart syndrome and was featured in Episode 3 of Season 1 of "Heart to Heart with Anna." Jessica has had both a heart and kidney transplant. In this program, Jessica and Amy will talk about Jessica's early health issues, her transplants, what they are doing now to help medical science and how their experiences are helping them now to cope with their mother's recent health issues.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate Link

Send us a textReturning Guest, David Franco, talks with Anna about what it's like to go into congestive heart failure and the new issues he is facing when considering medical end-of-life care. He talks about how his congenital heart defect has affected his activity level over the course of his life and what changes he has seen in the last several years. Most importantly, David talks about the importance of each patient needing to be his or her own best advocate to determine boundaries and limitation for care and others need to be respectful of those choices.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textReturning Guest, Dana Henning, shares with Anna what it was like for her family to find out in utero that her baby would be born with hypoplastic left heart syndrome and how they were prepared for their son to need surgical intervention but how they were in for a greater shock after he was born. Dana reveals the unusual conditions regarding her son's physiology that forced the family to accept that the only hope for their son to lead a normal life was a heart transplant -- and he couldn't wait. In this episode, Dana shares with Anna what it was like for her family to wait in the hospital until after her infant son actually received the gift of life -- a heart transplant -- within the first months of life.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the s

Send us a textDarryl Wallis is a 32-year-old pharmacist in Toronto, Canada. Because of a genetic mutation called MHY11, Darryl was born with a constellation of problems with his gastrointestinal tract.The extremely rare condition Darryl was born with is known as gastric-intestinal pseudo-obstruction. When Darryl was 20, he received a quadruple organ transplant, which included his stomach, small and large intestines, liver and pancreas. Darryl is now the father of a son who has also been diagnosed with the same genetic mutation. Today we’ll talk with him about how this condition has affected his life, his support for organ donation in Canada and what it was like to wait for multiple organs. He'll also tell us about how he is doing today and what it's like to be the recipient of multiple organs.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD com

Send us a textChristiana Whallon's daughter, Jaylee, was listed for a heart transplant due to being born with hypoplastic left heart syndrome and going into congestive heart failure. In this episode, Christiana shares with Anna what it was like watching her daughter's health decline to the point where she had to be listed for a heart, what preparing for the transplant process was like for her family, and how she has survived even though her daughter never received a heart transplant.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textIn today's episode former Guests Jamie Alcroft and Michael Liben come on the program together to deliver a powerful portrayal of two sides of the organ donation coin -- with Jamie Alcroft we hear about what it means to be an organ donor recipient and with Michael Liben we discover what it means to be the family member of an organ donor whose life gave many other people hope. Tune in to hear Anna interview both of these inspiring men and during the final segment, you can hear the gentlemen even talk with one another about their experiences. Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textJamie Alcroft has been entertaining audiences as part of the comedy duo Mack & Jamie for over 35 years. His appearances with Mack on The Tonight Show both with Johnny Carson and Jay Leno led to 125 original episodes of the syndicated half-hour COMEDY BREAK WITH MACK & JAMIE.In this episode of "Heart to Heart with Anna," Jamie shares with Anna what happened in his life that required him to get a heart and liver transplant, what it was like waiting for the organs needed to save his life and how the gift of life has affected him. You won't want to miss this episode of "Heart to Heart with Anna"!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple P

Send us a textMichael Liben is the Host of "Heart to Heart with Michael" and he is also the bereaved father of Liel Liben. In today's program, Michael discusses with Host, Anna Jaworski, why he and his family decided to donate Liel's organs when she died. He talks about the religious ramifications, who benefited from her donations and why he feels so strongly about organ donation.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textFarhan Ahmad is a social innovator and philanthropist who has devoted his life to helping children born in Pakistan with congenital heart defects. He is the founder & CEO of the Pakistan Children’s Heart Foundation, a non-governmental organization working to build a charity heart hospital in Lahore, Pakistan. His passion for helping children in Pakistan came from the loss of his daughter to congenital heart defects or CHDs when she was three years old. Pakistan suffers from an acute shortage of specialized staff and resources for any Pakistani child born with CHDs.Farhan shares the mission and vision for the Pakistan Children's Heart Foundation and the steps that will be needed for them to achieve their goals. He talks about the problems he and his countrymen have if they are to solve the persistently high percentage of children born in his country with congenital heart defects. Lastly, Mr. Ahmad speaks hopefully about the future of children in Pakistan and how his country can make the

Send us a textEl programa de hoy es uno de un par de programas que se presentarán durante esta serie de Spotlight que presenta Defectos cardíacos en todo el mundo. El programa de hoy está en español y el programa de la semana pasada fue en inglés. Nuestro programa presenta a la Anfitriona invitada, Marta Montero y la invitada, Jennifer Iguina. El programa de la semana pasada presentó a Jennifer Iguina y la anfitriona, Anna Jaworski. Este programa se centra en cómo Jennifer descubrió que su hijo nacería con síndrome de corazón izquierdo hipoplásico, cómo llegó a elegir la opción de tratamiento que ella tenía y cómo ella y toda su familia se convirtieron en defensores de la comunidad de defectos cardíacos congénitos. Jennifer también comparte cómo otros pueden ser defensores y pueden ayudar a educar al mundo sobre los defectos congénitos del corazón a medida que comienzan un viaje para encontrar que se escuchen sus voces.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visi

Send us a textToday's program is one in a pair of programs to be presented during this Spotlight Series which features Heart Defects Around the Globe. Today's program is in English and next week's program will feature Guest Host, Marta Montero and Guest, Jennifer Iguina in Spanish. Today's program features Jennifer Iguina and Host, Anna Jaworski. This program focuses on how Jennifer discovered her son would be born with hypoplastic left heart syndrome, how she came to choose the treatment option she did and how she and her entire family became advocates for the congenital heart defect community. Jennifer also shares how others can be advocates and help to educate the world about congenital heart defects as they start a journey to find their voices.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and findi

Send us a textIn addition to getting a more in-depth perspective regarding growing up with a special needs sister, what sets this episode apart from other "Heart to Heart with Anna" episodes is the fact that it is our very first program in Hebrew. In addition to this episode being aired in English, Sapir and Idan Liben will then conduct an interview with Rachel Greenbaum in Hebrew. Hearts Unite the Globe: A Nonprofit Organization for the Congenital Heart Defect Community is devoted to providing programming to the CHD community around the globe. Today's episode is one in a Spotlight Series of foreign language episodes designed to provide information and support to our community members around the globe.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna&apos

Send us a textעידן וספיר ליבן משוחחים עם המנחה האורחת רחל גרינבוים על איך מתנהלים החיים במחיצתו של אחות בעלת מום לב מולד ואוטיזם. הם ישתפו אותנו בחוויותיהם כאחים לאחות יוצאת דופן ויספרו לנו איך היא העשירה את חייהםThank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite