Heart To Heart With Anna

Send us a textHow can a coarctation of the aorta affect a person's life? What happens to a person when their congenital heart defect, once dormant, suddenly becomes an issue? How does an adult deal with the intrusion of a birth defect after living a normal life? Tune in for the answers to these questions and more!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textHow did a transposition of the great arteries Survivor take charge of her health and change the course of her heart disease? What are some powerful ways you can take back your health, despite what your doctor might say? What advice does this Survivor have for others? Tune in to hear Keri Kasaboski's triumphant story!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWe are providing this special encore presentation in honor of Frank Celeskey -- one of the Guests in today's show. He was a sweet heart dad who adored his daughter. Sadly, Frank passed away on May 14, 2016. Lauren has set up a GoFundMe to help take care of his burial expenses and to provide for her younger brother. If any of you would like to contribute to it, here is the link: https://www.gofundme.com/25rjxdgc.Today's show features both Frank Celeskey and Alysanne Crymes as they discuss how our parenting relationship changes as our CHD Warriors grow up and become Adult Survivors.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitte

Send us a textHow do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat inspired Lori M. Jones to become an author? What nonprofit organization does Lori work with? How is she using her voice to help those in the CHD community? Tune in to hear Lori share stories and information with us.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textThis show has been specially chosen in honor of Mother's Day. Tune in to hear this mother's story about the miracles she has witnessed from watching her infant son undergo surgery for transposition of the great arteries, face feeding issues and question the wisdom of having another child.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textGabriel Santana was born in São Paulo Brazil in 1988 with hypoplastic right, single ventricle, ventricular septal defect and a heart murmur. At first the doctors thought Gabriel only had a heart murmur and sent him home. After almost a year Gabriel’s condition worsened as he developed pneumonia and started experiencing fluid in the sac around his heart. What is healthcare like in Brazil? What assistance is there for children born with congenital heart defects (CHDs) in Brazil? What new challenges is this adult survivor facing now?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat is healthcare like in Puerto Rico? How did one mother respond when she couldn't find resources for her son in Spanish? What advice does Marta Montero have for other Puerto Rican heart parents?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat is healthcare like in Australia? What support group is there for children born with congenital heart defects (CHDs) in Australia? Is there hope for children born with critical congenital heart defects Down Under? Tune in to hear two heart parents' perspectives on raising a child with hypoplastic left heart syndrome in Australia.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a text¿Qué es cuidado de la salud como en Costa Rica? ¿Qué piensa un cardiólogo pediatra, son algunos de los problemas de que su gente tiene en conseguir la atención médica que necesitan si nace con un defecto cardíaco?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat is healthcare like in Costa Rica? What does a pediatric cardiologist think are some of the problems his countrymen have in getting the healthcare they need if they're born with a heart defect? How common are heart defects in Costa Rica? Tune in to learn the answers to these questions and more!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat is health like in Italy? How does a father, who is also a doctor, deal with having a son with a critical heart defect? What advice does the father of an adult with a heart defect have for other Italian heart parents?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat is World Down Syndrome Day? How many people born with Down Syndrome also have a CHD? What do parents of children born with Down Syndrome need to know?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textTwenty-nine years ago a boy was born in Pakistan with a broken heart. What happened to him? What profession is he studying now as a means of giving back? What nonprofit organization gave this boy, and his whole family, a chance to live a happy and productive life? Tune in to find out!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textHow does the mother of an angel and a rainbow baby feel about the medical care she received in Germany? What kind of care was there for babies with heart defects in Germany almost 20 years ago? What advice does this mother have for other German mothers?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat is healthcare like in Keyna? What assistance is there for children born with congenital heart defects (CHDs) in Keyna? What can Listeners do to help the CHD community in Keyna? Today's Guest, Peter Mbogo Kamau tells us about the nonprofit organization he founded, Take Heart Association Project, and how it's helping the people of Kenya.Sadly, Peter Mbogo Kamau passed away in 2016. Since then the NGO he started in 1992 is going strong, although it has changed names. Now known as Care for a Child's Heart, the organization is still funding life-saving surgery to children in Africa who would otherwise perish. Here is the link to their website: https://cfach.org/about-us/Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affi

Send us a textThis show features Kristi Pena, the mother of a Barth Syndrome survivor. She shares stories about the miracles she has experienced since Christopher's birth and diagnosis.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textHow do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textIs it possible to find true love even if you're born with a broken heart? What kind of people are willing to marry a person with a congenital heart defect? What advice do adults with CHDs have for others looking for love?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Send us a textWhat happens when a child born with a heart defect (CHD) also has mental impairments? What problems do children with cognitive impairments have? What advice does a mom dealing with a child with both a CHD and cognitive impairment have for others?Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite