Sinopsis
"Heart to Heart with Anna" is the only radio show devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.
Episodios
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Congenital Heart Defect Awareness at Podcast Movement 2019
27/08/2019 Duración: 26minSend us a textAnna Jaworski, the Host of "Heart to Heart with Anna" attended Podcast Movement 2019 -- a conference, especially for podcasters. While at the conference, Anna met a number of people who had been touched by congenital heart defects, a fact she became aware of after she met new people and talked about the different podcasts each person made. This spawned an idea in Anna's mind -- to actually record people's stories about how congenital heart defects has impacted their lives thanks to the friends and relatives who have been touched by congenital heart defects. Unlike most of Anna's episodes, this one was completely spontaneous and impromptu. Take a look at how people in the podcasting community have been affected by congenital heart defects in this interesting and informative interview.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook
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Behind the Scenes with Hearts Unite the Globe
20/08/2019 Duración: 31minSend us a textThis is a special episode of Heart to Heart with Anna that was recorded at Podcast Movement 2019 in Orlando, Florida. Buzzsprout set up a studio and invited its members to record a show at the conference. Three Hearts Unite the Globe (HUG) Board Members were attending the conference -- Guests: Laura Redfern and Frank Jaworski and Host: Anna Jaworski.Listen as the three Board Members talk about what HUG means to them, where HUG has been and where the Board Members believe it's headed, why HUG now has a Patreon account and how others can be Patrons, supporters of Heart to Heart with Anna, Heart to Heart with Michael and future podcasts in the HUG Podcast Network.Special thanks to Buzzsprout for setting up the studio and doing the recording of this program.For more information about HUG, check out our website.Visit our Patreon account to join our team! Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or
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Interwoven Lives and Congenital Heart Defects
13/08/2019 Duración: 32minSend us a textBrandon Lane Phillips, M.D. is a very special doctor -- he's a pediatric cardiologist who was also born with a severe congenital heart defect -- tetralogy of Fallot. In this episode of "Heart to Heart with Anna," Brandon talks to Anna about the people who have come in and out of his life and who have helped to shape him into the person he is today. He shares his medical journey with Anna, as well as his educational struggles and how he was able to overcome his learning disability to achieve his dream of becoming a pediatric cardiologist.To purchase Dr. Phillip's book, use this link: https://tinyurl.com/y5grtz7vPlease take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and woul
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Travels of a Heart Warrior!
06/08/2019 Duración: 31minSend us a textMegan Tones is a woman who was born with multiple congenital heart defects and who has undergone multiple medical procedures. In this episode of Heart to Heart with Anna, Megan details special considerations and precautions she underwent before (and during!) her travels to China, Egypt, and Japan. A native Australian, Megan has appreciated the beauty and majesty of these other countries and doesn't believe her heart defect should hold her back from the travel she and her husband so enjoy.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartThank you to everyone who has helped HUG in cr
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The Changing Landscape of Care for Young Adults with CCHDs
30/07/2019 Duración: 31minSend us a textReturning Guest, Vicki Lucas, shares with Anna how care for her son, Alexander, has changed over time, especially as he has transitioned from pediatric care to care for an adult with a critical congenital heart defect. As a special education teacher, Vicki has worked very hard as Alexander's advocate and she shares what she has done to help him be an advocate for himself. She also gives tips to parents on how they can best prepare their adult children as they leave home and go off to college. She also shares her family's journey for the right cardiologist for Alexander after his cardiologist since childhood retired.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would lik
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Hearts Unite the Globe's Summer of 2019 Audio Newsletter
23/07/2019 Duración: 28minSend us a textHearts Unite the Globe is full of news! Tune into this episode of Heart to Heart with Anna to hear about all of the activities in which HUG members are participating. In this episode of Heart to Heart with Anna, learn about upcoming training opportunities/retreats being sponsored by HUG -- retreats in Central Texas, Jerusalem, Israel, and Tuscon, Arizona!You'll also hear about a special award presented to Anna Jaworski (Host of Heart to Heart with Anna and HUG's Executive Director) during the Mended Little Hearts annual CHD Symposium. Tune in to discover what CHD conferences will be held during the rest of 2019 and locate information about the conferences on https://www.hug-podcastnetwork.com/scheduled-events-calendar.html. In this episode, you'll also discover why Anna chose to create a Facebook birthday fundraiser and how it turned out. Also, tune in to hear about why Michael Liben (Host of Heart to Heart with Michael) decided to volunteer to work with HUG and why he continues t
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Silent Cries: Breaking Through CHD Awareness
16/07/2019 Duración: 29minSend us a textPremiering August 6, 2019, Silent Cries: Breaking Through CHD Awareness is Phillip Wolf's latest documentary. With over forty types of CHDs, Silent Cries: Breaking Through CHD Awareness is produced to focus on children and adults born with heart defects and how they have inspired other families and individuals to never give up and continue their fight. There is hope, and advancements in technology are evolving rapidly, yet a cure seems elusive. Many CHDs (congenital heart defects) go undetected until later in adult life.Join Anna today as she interviews the creator and producers of Silent Cries. Phillip Wolf was inspired to create this documentary due to the death of his son, Jeremiah, from his congenital heart defect. Executive Producer/Producer Nicole Vickery was born with a congenital heart, as was Co-Producer David Franco. They share with Anna why they became involved with this project and why it's important for everyone to watch this documentary.Silent Cries: Breaking Through CHD
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Shameless Appeals for Applause: With A 66-Year Old ccTGA Heart Warrior
09/07/2019 Duración: 31minSend us a textAnn Koplow is an extraordinary Heart Warrior, blogger, and musician. Born in 1953, she is one of the oldest child survivors of heart block requiring pacemaker insertion. Despite many mechanical failures with her pacemaker, Ann has continued to have an upbeat, positive attitude. In today's program, Ann shares with Host Anna Jaworski what it was like growing up with heart block, how her ultimate heart defect was finally diagnosed, how she helped other children in the hospital and more! You won't want to miss this fun and entertaining interview!Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.co
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From Learning Disabled to College Professor
02/07/2019 Duración: 32minSend us a textKathy Ware was born in 1974 with tricuspid atresia and pulmonary stenosis. Her first surgery occurred in her first year of life when she had a Potts shunt. At age 5, she had a central shunt inserted. In 1989 she had a Potts reconstruction and modified Blalock-Taussig shunt and then a classic Glenn procedure. All of these surgeries were done with the plan of having a Fontan Procedure, but she developed pulmonary stenosis and has never had the Fontan.In this episode of Heart to Heart with Anna, Kathy Ware talks with Anna about what it was like to be diagnosed with a learning disability and how she overcame her issues to become a college professor. She gives advice to other heart families about dealing with congenital heart defects and learning disabilities. She also demonstrates through her own life how perseverance and determination can allow people to overcome seemingly insurmountable obstacles.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.appl
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A Connection between the Flu, Arthritis & Heart Disease: A Mother’s Instincts
25/06/2019 Duración: 30minSend us a textMarie O’Donnell is Heart Mom to Anna who was born with complex, congenital heart disease. Anna is a Fontan Warrior and has been a model cardiac patient for more than a decade. Anna was born with double outlet right ventricle, complete atrioventricular canal defect, patent ductus, heterotaxy syndrome, ADHD and anxiety disorder. Marie O’Donnell is a return Guest. During Season 2, Marie joined Kathy Baker and Dawn Silverman in an episode entitled, “Making Memories Every Day.” Marie is a schoolteacher and has worked with the Make a Wish Foundation as a Wish Granter.In this episode of "Heart to Heart with Anna," Marie talks with Anna about her daughter's experience after she contracted the flu. Is there a connection between heart defects, the flu, and arthritis? Tune in to hear what Marie's motherly instinct believes about her daughter's chronic illness.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart
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Crunching Numbers for CHD Research
18/06/2019 Duración: 30minSend us a textAntara Mondal was born with aortic stenosis and has undergone open-heart surgery. In this episode of Heart to Heart with Anna, Antara shares what it was like growing up with a congenital heart defect (CHD), how it affected her childhood and early adulthood and why she chose to study statistics at Carnegie Mellon University. She'll also explain to Anna what field of study she plans to pursue as a post-graduate and how statistics can help doctors working in the field of pediatric cardiology.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartThank you to everyone who has helped HUG in c
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2019 Mended Little Hearts Symposium and Leadership Summit with Jodi Smith!
11/06/2019 Duración: 32minSend us a textMended Little Hearts National Program Director Jodi Smith joins Anna in this episode to discuss the upcoming 2019 Mended Little Hearts Symposium and Leadership Summit in Milwaukee, Wisconsin. The Leadership Summit will occur on July 12th and the Symposium will occur on July 13th. You can register for the event here: https://mendedhearts.org/chd-symposium/In this episode, Jodi tells Anna about how the Keynote Speaker was selected, why people should attend the Leadership Summit and Symposium and what benefits they can derive from attending. She details what it has been like for her as a parent of a child with a heart defect and how others can not only help themselves but help others, too, by being part of this organization.With professional training from Parent-to-Parent of Wisconsin and Ex Fabula, the Leadership Summit will be a must-attend event for those who wish to promote congenital heart defect awareness. The symposium will feature speakers and panel discussions sure to assist parents and He
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Upbeat CHD Thriver, Author and Motivational Speaker, Beth Greenaway!
04/06/2019 Duración: 30minSend us a textBeth Greenaway has an amazing story to share with Anna in this brand new episode of Heart to Heart with Anna. Beth helps Anna kick off Season 14 of this podcast for the CHD community by sharing her CHD journey and how she most recently came to deal with a number of harrowing experiences.As you can see by the cover photo, Beth Greenaway is a published author. She shares with Anna how she came to write a book and how it can help people, not only in the congenital heart defect (CHD) community but in other communities where they might face medical adversity.Join us today, or at your convenience, to hear this motivational, exceptional CHD Thriver, Author and, dare we say, Philosopher?!To purchase Beth's book, use this link: https://tinyurl.com/y4qwq76wPlease take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.c
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Coronary Artery Disease in the CHD Community!
09/04/2019 Duración: 39minSend us a textThis new episode of Heart to Heart with Anna featured Guest, Dr. Fred Wu from Boston Children's Hospital and he interacts with a live, studio audience to answer their questions regarding coronary artery disease in adults born with congenital heart defects. Tune in to hear why this situation is being talked about now more than ever before, what you can do to prevent or reduce the likelihood of contracting coronary artery disease and what congenital heart defects are most prone to having problems with coronary artery disease.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
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Pediatric Cardiologist, Researcher, Mentor & Podcaster!
02/04/2019 Duración: 35minSend us a textDr. Robert Pass is the Chief of Pediatric Cardiology and the co-director of the Pediatric Heart Center at The Icahn School of Medicine at Mount Sinai in NYC. He is also the director of pediatric electrophysiology at the same institution. His career goals are to develop and perform cardiac procedures to help the cardiac health of children and adults with congenital heart disease.He has started a Pediatric Cardiology Podcast that reviews some of the latest literature in the field of pediatric cardiovascular medicine and he also interviews thought leaders in the field. The program, ‘Pediheart: Pediatric Cardiology Today,’ is available on iTunes, Spotify, and Stitcher. Today he talks with Anna about how he entered the field of pediatric cardiology, what he does as a pediatric cardiologist and how he came to add “podcaster” to his resume.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We
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Telemedicine and Patients with Congenital Heart Defects
26/03/2019 Duración: 31minSend us a textDr. Ami Bhatt is the featured Guest on this episode of Heart to Heart with Anna. Dr. Ami Bhatt is an active clinical cardiologist, clinical investigator, and educator. She has developed a robust multidisciplinary curriculum at Mass General to provide requisite ACHD education to cardiovascular fellows. Dr. Bhatt is dedicated to patient advocacy groups including the AHA and Adult Congenital Heart Association and empowering individuals with CHD to lead full and productive lives.In this episode, Anna talks with Dr. Bhatt about becoming an adult congenital cardiologist specializing in the care of adults with CHDs, why she developed a telemedicine program for her patients and where she believes the future of medicine is headed. You won't want to miss this show which discusses an up-and-coming trend to prevent Heart Warriors from being lost to follow-up care.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate o
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A Conversation with a Psychologist born with a Congenital Heart Defect
19/03/2019 Duración: 31minSend us a textIn this episode of Heart to Heart with Anna, Dr. Liza Morton rejoins Anna to talk more about polyvagal theory, how feeling safe is important to those born with congenital heart defect, especially when they are in vulnerable conditions (such as when they're facing hospitalizations or experimental procedures) and how understanding the embodiment of their experiences can be both empowering and healthy. She also addresses how Heart Warriors may come to experience at least one kind of Post-Traumatic Stress Disorder (PTSD). She even relates how older Heart Warriors may have experienced attachment problems due to common medical practices in the 1950s, 1960s and even 1970s or 1980s. To find out what kind of PTSD circumstances are common for those born with congenital heart defects and what they can do about it, tune in to this episode of Heart to Heart with Anna.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate
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An Embodied Understanding of Living with a CHD
12/03/2019 Duración: 34minSend us a textDr. Liza Morton, a Heart Warrior, is also a psychologist who really understands what it means to live with chronic illness. In this episode, she talks with Anna about a new theory that she feels will revolutionize people's understanding of living with chronic illness, her personal experiences from having open-heart surgery and having medical devices implanted and how those life experiences led to her choice of a career.Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
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Helping Our Children Become Their Own Best Advocates
05/03/2019 Duración: 27minSend us a textThis week's featured episode discusses a very important topic -- transitioning our Heart Warriors from dependents to advocates -- and it doesn't happen overnight. Lisa Rodebaugh does an excellent job of sharing how she raised Andrew Rodebaugh so that he could become his own best advocate but this show is about so much more than that! Tune in to hear how Andrew Rodebaugh is not only an advocate for himself but also an inventor working to make life better for people everywhere with his creative and practical app. You won't want to miss this fast-paced show from Philadelphia, PA at the Podcast Movement!Thank you to everyone who has helped HUG in creating our podcasts and other resources. Visit https;//www.heartsunitetheglobe.com to donate or join us!HeartWorks: We Build HeartsHeartWorks empowers the CHD community by advancing research and finding cures for heart defects.Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFac
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Nutritional Considerations for the Congenital Heart Defect Community
26/02/2019 Duración: 43minSend us a textSkylar Griggs is a licensed registered dietitian and nutrition counselor specializing in a variety of nutrition-related conditions. She has experience working in pediatric and family nutrition as well as pre/post-natal nutrition, eating disorders, weight management, cardiac risk factors including hypertension, high cholesterol and obesity, diabetes, and overall wellness. Skylar is the lead dietitian for the preventive cardiology division at Children’s Hospital Boston, the teaching hospital of Harvard Medical School. In this episode, Skylar talks with Anna about the special dietary concerns of members of the congenital heart defect community. She shares with Anna why she is passionate about nutrition and being a dietician and she explains how taking care of ourselves by eating healthy food doesn't have to be that hard.In addition to talking with Anna, Skylar spends the last segment of the show answering questions from a live, studio audience. The audience features members from around the wor